Publications by Preston Alexander Long
2024
- Porth A.-K., Seidler Y., Long P.A., Huberts A.S., Hamilton K., Stamm T., Kautzky-Willer A.
Monitoring What Matters to People with Diabetes: Do We Underestimate the Importance of Behaviour, Attitude, and Well-Being?
Patient Education and Counseling 128:108377, (2024) [bib]
@ARTICLE{porth2024mwmt108377, author = {Porth, A.-K.~ and Seidler, Y.~ and Long, P.A.~ and Huberts, A.S.~ and Hamilton, K.~ and Stamm, T.~ and Kautzky-Willer, A.~}, title = {Monitoring What Matters to People with Diabetes: Do We Underestimate the Importance of Behaviour, Attitude, and Well-Being?}, journal = {Patient Education and Counseling}, year = {2024}, volume = {128}, pages = {108377}, issn = {1873-5134 0738-3991}, doi = {10.1016/j.pec.2024.108377}, keywords = {Patient-reported outcomes;Diabetes mellitus;type 1;Diabetes mellitus;type 2;Healthcare delivery;Person-centred care} } - Porth A.-K., Seidler Y., Long P.A., Stamm T., Huberts A.S., Hamilton K., Kautzky-Willer A.
Putting Person-Centred Psychosocial Diabetes Care into Practice: Two Psychosocial Care Pathways Based on Outcome Preferences of People with Diabetes and Healthcare Professionals.
BMJ Mental Health 27:e301061, (2024) [bib]
@ARTICLE{porth2024pppde301061, author = {Porth, A.-K.~ and Seidler, Y.~ and Long, P.A.~ and Stamm, T.~ and Huberts, A.S.~ and Hamilton, K.~ and Kautzky-Willer, A.~}, title = {Putting Person-Centred Psychosocial Diabetes Care into Practice: Two Psychosocial Care Pathways Based on Outcome Preferences of People with Diabetes and Healthcare Professionals.}, journal = {BMJ Mental Health}, year = {2024}, volume = {27}, pages = {e301061}, issn = {2755-9734}, doi = {10.1136/bmjment-2024-301061}, keywords = {Adult;Female;Humans;Male;Aged;Middle Aged;Cross-Sectional Studies;Data Interpretation;Statistical;Quality of Life/psychology;*Patient-Centered Care;Social Support;*Delphi Technique;Anxiety disorders;Depression \& mood disorders;Diabetes Mellitus;Type 1/therapy/psychology;Diabetes Mellitus/therapy/psychology;Eating disorders;Health Personnel/psychology;Patient Preference/psychology;Psychosocial Intervention/methods} } - Balikó F., Csókási K., Pohárnok M., Vincze O., Kumánovics G., Deme M., Long P.A., Stamm T.
Temporal Recall Strategies in Rheumatoid Arthritis Patients’ Emotionally Intense Life Events.
International Journal of Environmental Research and Public Health 21(6):759, (2024) [bib]
@ARTICLE{balikó2024trsr759, author = {Balikó, F.~ and Csókási, K.~ and Pohárnok, M.~ and Vincze, O.~ and Kumánovics, G.~ and Deme, M.~ and Long, P.A.~ and Stamm, T.~}, title = {Temporal Recall Strategies in Rheumatoid Arthritis Patients’ Emotionally Intense Life Events.}, journal = {International Journal of Environmental Research and Public Health}, year = {2024}, volume = {21}, number = {6}, pages = {759}, issn = {1660-4601 1661-7827}, doi = {10.3390/ijerph21060759}, keywords = {Adult;Female;Humans;Male;Aged;Middle Aged;*Mental Recall;rheumatoid arthritis;*Arthritis;Rheumatoid/psychology;*Emotions;adaptation;Anxiety/psychology;Depression/psychology;Life Change Events;life story;patient-reported outcome;recalling patterns;savoring} }
2023
- Long P., Scholl J., Wang X., Kallsen N., Ehli E., Freeman H.
Intranasal Oxytocin and Pain Reduction: Testing a Social Cognitive Mediation Model.
Brain Sciences 13(12):1689, (2023) [bib]
@ARTICLE{long2023iopr1689, author = {Long, P.~ and Scholl, J.~ and Wang, X.~ and Kallsen, N.~ and Ehli, E.~ and Freeman, H.~}, title = {Intranasal Oxytocin and Pain Reduction: Testing a Social Cognitive Mediation Model.}, journal = {Brain Sciences}, year = {2023}, volume = {13}, number = {12}, pages = {1689}, issn = {2076-3425}, doi = {10.3390/brainsci13121689} } - Long P., Stamm T.
The Case for Patient-Reported Pleasure.
Patient Experience Journal 10(3), 13–14, (2023) [bib]
@ARTICLE{long2023cpp1314, author = {Long, P.~ and Stamm, T.~}, title = {The Case for Patient-Reported Pleasure.}, journal = {Patient Experience Journal}, year = {2023}, volume = {10}, number = {3}, pages = {13--14}, doi = {10.35680/2372-0247.1853}, url = {https://www.scopus.com/inward/record.uri?eid=2-s2.0-85176416293\&doi=10.35680%2f2372-0247.1853\&partnerID=40\&md5=c97fb1d3c51204f34338dd68f01c62bb} } - Kreuter M., Antoniou K., Avouac J., Bendstrup E., Brown G., Castellvi I., Castañeda S., Cottin V., Crestani B., Dieude P., Galvin L., Geissler K., Green C., Jacob J., Jones S., Krause A., Long P., Maurer B., Mosor E., Maher T., Pchelnikova P., Van Rompay J., Tak N., De Vries-Bouwstra J., Valenzuela C., Wijsenbeek M., Hoffmann-Vold A.
RA-ILD – New Insights into Disease Burden from an International Patient Survey.
European Respiratory Journal 62(Suppl 67: Abstracts European Respiratory Society (ERS) International Congress 2023, Milan, Italy, 9–13 September 2023):PA3467, (2023) [bib]
@ARTICLE{kreuter2023rniipa3467, author = {Kreuter, M.~ and Antoniou, K.~ and Avouac, J.~ and Bendstrup, E.~ and Brown, G.~ and Castellvi, I.~ and Castañeda, S.~ and Cottin, V.~ and Crestani, B.~ and Dieude, P.~ and Galvin, L.~ and Geissler, K.~ and Green, C.~ and Jacob, J.~ and Jones, S.~ and Krause, A.~ and Long, P.~ and Maurer, B.~ and Mosor, E.~ and Maher, T.~ and Pchelnikova, P.~ and Van Rompay, J.~ and Tak, N.~ and De Vries-Bouwstra, J.~ and Valenzuela, C.~ and Wijsenbeek, M.~ and Hoffmann-Vold, A.~}, title = {RA-ILD – New Insights into Disease Burden from an International Patient Survey.}, journal = {European Respiratory Journal}, year = {2023}, volume = {62}, number = {Suppl 67: Abstracts European Respiratory Society (ERS) International Congress 2023, Milan, Italy, 9–13 September 2023}, pages = {PA3467}, issn = {0903-1936}, doi = {10.1183/13993003.congress-2023.PA3467} } - Hoffmann-Vold A., Antoniou K., Avouac J., Bendstrup E., Brown G., Castellvi I., Castañeda S., Cottin V., Crestani B., Dieude P., Galvin L., Jacobs J., Jones S., Krause A., Long P., Krause B., Mosor E., Maher T., Pchelnikova P., Tak N., De Vries-Bouwstra J., Valenzuela C., Wijsenbeek M., Kreuter M.
Screening for ILD in RA: A Survey of 1132 Patients with RA.
European Respiratory Journal 62(Suppl 67: Abstracts European Respiratory Society (ERS) International Congress 2023, Milan, Italy, 9–13 September 2023):PA3468, (2023) [bib]
@ARTICLE{hoffmannvold2023sirapa3468, author = {Hoffmann-Vold, A.~ and Antoniou, K.~ and Avouac, J.~ and Bendstrup, E.~ and Brown, G.~ and Castellvi, I.~ and Castañeda, S.~ and Cottin, V.~ and Crestani, B.~ and Dieude, P.~ and Galvin, L.~ and Jacobs, J.~ and Jones, S.~ and Krause, A.~ and Long, P.~ and Krause, B.~ and Mosor, E.~ and Maher, T.~ and Pchelnikova, P.~ and Tak, N.~ and De Vries-Bouwstra, J.~ and Valenzuela, C.~ and Wijsenbeek, M.~ and Kreuter, M.~}, title = {Screening for ILD in RA: A Survey of 1132 Patients with RA.}, journal = {European Respiratory Journal}, year = {2023}, volume = {62}, number = {Suppl 67: Abstracts European Respiratory Society (ERS) International Congress 2023, Milan, Italy, 9–13 September 2023}, pages = {PA3468}, issn = {0903-1936}, doi = {10.1183/13993003.congress-2023.PA3468} } - Andrews M.R., Long P.A., Ahlberg M., Balvert F., Alessandrello R., Lazzari A., Timmermann M.M., Nouri Janian M., Rantaniska M., Spence A., Söderman P., Valls-Comamala V., Stamm T.
A European Arena for Joint Innovation in Healthcare: The Platform for Innovation of Procurement and Procurement of Innovation (PiPPi).
Frontiers in Public Health 10:1000590, (2023) [bib]
@ARTICLE{andrews2023aeaj1000590, author = {Andrews, M.R.~ and Long, P.A.~ and Ahlberg, M.~ and Balvert, F.~ and Alessandrello, R.~ and Lazzari, A.~ and Timmermann, M.M.~ and Nouri Janian, M.~ and Rantaniska, M.~ and Spence, A.~ and S{\"o}derman, P.~ and Valls-Comamala, V.~ and Stamm, T.~}, title = {A European Arena for Joint Innovation in Healthcare: The Platform for Innovation of Procurement and Procurement of Innovation (PiPPi).}, journal = {Frontiers in Public Health}, year = {2023}, volume = {10}, pages = {1000590}, issn = {2296-2565}, doi = {10.3389/fpubh.2022.1000590}, keywords = {Europe;European Union;health policy;*Delivery of Health Care;Community of Practice;digital health;health innovation;innovation procurement;university hospital} }
2022
- Stamm T., Long P., Rogge A., Patalano F., Benard A., Porth A., Fierens L., Kautzky-Willer A., Styliadou M.
General and Scalable versus Disease-Specific and Targeted: To What Extent Should We Measure Outcomes from These Two Areas?
Value in Health 25(12, Suppl: Abstracts ISPOR Europe 2022, 06–09 November 2022), S411, (2022) [bib]
@ARTICLE{stamm2022gsvds411s411, author = {Stamm, T.~ and Long, P.~ and Rogge, A.~ and Patalano, F.~ and Benard, A.~ and Porth, A.~ and Fierens, L.~ and Kautzky-Willer, A.~ and Styliadou, M.~}, title = {General and Scalable versus Disease-Specific and Targeted: To What Extent Should We Measure Outcomes from These Two Areas?}, journal = {Value in Health}, year = {2022}, volume = {25}, number = {12, Suppl: Abstracts ISPOR Europe 2022, 06–09 November 2022}, pages = {S411}, issn = {1098-3015}, url = {https://www.valueinhealthjournal.com/action/showPdf?pii=S1098-3015%2822%2904247-4} } - Long P., Ritschl V., Otto L., Rogge A., Koppert L., Huberts A., Stamm T.
Systematic Literature Review Examining the Mere-Measurement Effect of Patient Reported Measures: The Interaction of Emotional Valence and Frequency of Exposure as an Independent Factor in Patient Change.
medRxiv 2022.03.29.22273094, (2022) [bib]
@ARTICLE{long2022slre2022032922273094, author = {Long, P.~ and Ritschl, V.~ and Otto, L.~ and Rogge, A.~ and Koppert, L.~ and Huberts, A.~ and Stamm, T.~}, title = {Systematic Literature Review Examining the Mere-Measurement Effect of Patient Reported Measures: The Interaction of Emotional Valence and Frequency of Exposure as an Independent Factor in Patient Change.}, journal = {medRxiv}, year = {2022}, pages = {2022.03.29.22273094}, doi = {10.1101/2022.03.29.22273094}, url = {http://medrxiv.org/content/early/2022/03/30/2022.03.29.22273094.abstract} } - Stamm T., Andrews M., Benard A., Cossio Y., Delnoij D., Kalra D., Koppert L., Long P., Mosor E., Otto L., Rose M., Kristensen J., Thwaites R., Styliadou M.
Strengthening the Patient Voice in Health Outcome Measurement in Real-World Data in Europe – The Health Outcomes Observatory.
Value in Health 25(12, Suppl: Abstracts ISPOR Europe 2022, 06–09 November 2022):S472, (2022) [bib]
@ARTICLE{stamm2022spvhs472, author = {Stamm, T.~ and Andrews, M.~ and Benard, A.~ and Cossio, Y.~ and Delnoij, D.~ and Kalra, D.~ and Koppert, L.~ and Long, P.~ and Mosor, E.~ and Otto, L.~ and Rose, M.~ and Kristensen, J.~ and Thwaites, R.~ and Styliadou, M.~}, title = {Strengthening the Patient Voice in Health Outcome Measurement in Real-World Data in Europe – The Health Outcomes Observatory.}, journal = {Value in Health}, year = {2022}, volume = {25}, number = {12, Suppl: Abstracts ISPOR Europe 2022, 06–09 November 2022}, pages = {S472}, issn = {1098-3015}, url = {https://www.valueinhealthjournal.com/action/showPdf?pii=S1098-3015%2822%2904552-1} }