The following ongoing and completed research projects have been initiated or conducted by researchers of the Institute of Outcomes Research:
Ongoing Projects
Project: Integration of Heterogenous data and Evidence towards Regulatory & HTA Acceptance
Website: https://www.iderha.org/
(Partly) Funded: IHI Innovative Health Initiative
Project duration: 2023 - 2028
Project team (OR): Tanja Stamm, Nadja Kartschmit, Maryam Jafarpour, Erika Mosor, Fahrhad Lotfi
Scope: IDERHA is part of the Europe's Beating Cancer Plan. It will link and analyse, with artificial intelligence and machine learning, diverse human health data to improve early detection of lung cancer and the quality of life for individuals with experience with lung cancer. IDERHA has the task to demonstrate that this data-driven approach provides added value for patients where clinical co-decision making and personalised disease management is possible.
Project: UNIFIED - Unifying Framework for Patient-centered Clinical-study Endpoints derived from Digital Health Technologies
Website: https://www.unified-project.eu/
(Partly) Funded: IHI Innovative Health Initiative
Project duration: 2025 – 2029
Project team (OR): Tanja Stamm, Preston Long
Scope: UNIFIED aims to improve patient-centred care by ensuring that healthcare decisions are patient-centred and reflect the actual value for patients. This will improve treatment outcomes and ensure the long-term effectiveness and economic sustainability of the healthcare system.
Project: Hospital@Home
Website: https://hospitalathome-ihi.eu/
(Partly) Funded: IHI Innovative Health Initiative
Project duration: 2026 - 2030
Project team (OR): Tanja Stamm, Preston Long
Scope: Hospital@Home is a European initiative that brings hospital-level care directly to patients’ homes, transforming how chronic and complex conditions are diagnosed, monitored, and treated. Using intelligent digital technologies, AI-enabled decision support, and patient-centered care models, H@H sets the foundation for future integrated, sustainable healthcare systems across Europe.
Project: Prehabilitation to Rehabilitation: A seamless, digitally supported care pathway
Website: https://prehab2rehab.at/
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2025 - 2027
Project team (OR): Tanja Stamm, Margaret Renn Andrews, Valentin Ritschl, Anna Kienel, Valentina Schmolik
Scope: Prehabilitation to rehabilitation: A seamless, digitally supported care pathway. The project investigates how people can be best supported throughout the entire care pathway—before and after a planned operation. The aim is to design integrated, digitally supported, and individually tailored care that strengthens both patients and the healthcare system in the long term.
Project: FOXDenCity - Open Source Health Data Donation
Website: https://www.wwtf.at/funding/programmes/ei/DARE25-069/index.php?lang=EN
(Partly) Funded: WWTF
Project duration: 1.7.2026 – 31.12.2027
Project team (OR): Tanja Stamm, Erika Mosor
Scope: FoxDenCity will develop a scalable, open-source toolkit for secure and citizen-driven donation of electronic health data for medical research, building on Austria’s ELGA infrastructure and the Smart FOX project. By enabling privacy-preserving, interoperable and ethically robust data donation workflows, the project aims to lay the foundation for a future Austrian Health Data Donation Space while ensuring citizens retain sovereignty over their health data.
Project: Adherence to Conventional and Herbal Obesity Treatments: A Cross-Cultural Study Integrating Evidence, Patient Preferences, and Predictive Modeling
Website: https://asea-uninet.org/
(Partly) Funded: ASEAN-European Academic University Network (ASEA-UNINET)
Project duration: 01.7.2026 - 31.12.2027
Project team (OR): Tanja Stamm, Valentin Ritschl, Maryam Jafarpour
Scope: ASEA-UNINET Adherence to Conventional and Herbal Obesity Treatments is a cross-cultural research initiative exploring how cultural backgrounds influence adherence to conventional obesity treatments, such as GLP-1 receptor agonists, compared with herbal and complementary therapies. Combining clinical data, patient preferences, and predictive modeling, the project aims to identify key factors influencing long-term treatment adherence and weight management.
Project: Improving research and care for muscle-invasive bladder cancer (MIBC)
Website: https://urologie.meduniwien.ac.at/forschung/strike-bladder-cancer/
(Partly) Funded: through the Ludwig Boltzmann Gesellschaft (LBG) Clinical Research Groups (KFG) programme.
Project duration: 1.1.2026-31.12.2029
Project team (OR): Tanja Stamm
Scope: StrikeBC is an Austrian nationwide collaborative initiative aimed at sustainably improving research and care for muscle-invasive bladder cancer (MIBC). Leading experts from different disciplines work together to develop innovative clinical trials and new diagnostic, biomarker, and treatment strategies. A strong focus is placed on patient-centredness, with patient representatives actively involved in research, decision-making, and the evaluation of patient-relevant outcomes.
Project: Better Life in Osteoarthritis Registry (BLOAR)
(Partly) Funded: Ludwig Boltzmann Institut (LBI)
Project duration: 2017 -
Project team (OR): Tanja Stamm, Lisa Dorfer, Valentin Ritschl, Valentina Schmolik, Michael Vorstandlechner
Scope: BLOAR is the first Austrian multicenter registry for osteoarthritis. It serves as a reliable database for osteoarthritis research and a basis for the development of various interventions. In addition, it can offer a holistic, multidisciplinary approach to the treatment of osteoarthritis patients.
Project: Implementation and evaluation of a telerehabilitative and a paper-based aftercare program following completion of an inpatient rehabilitation stay
(Partly) Funded: Telerehabilitative Aftercare Neuro
Project duration: 2023 -
Project team (OR): Lisa Dorfer, Tanja Stamm, Valentin Ritschl, Maryam Jafarpour
Scope: Continuous aftercare after inpatient neurological rehabilitation is crucial for patients’ health and quality of life, yet it is often difficult to implement. Individually tailored home exercise programs can support care after discharge. In a randomised, controlled, three-arm study conducted at the Neurological Rehabilitation Centre Rosenhügel in Vienna, telerehabilitative and paper-based aftercare programs are compared to determine which approach is most beneficial for patients.
Project: Chronic Wound Prevalence and Outcomes - Real-World Data-Driven Planning in Chronic Wound Care: Epidemiology, Healthcare Utilisation, and AI-Based Analysis
(Partly) Funded: Federal Ministry for Women, Science and Research (BMFWF), Ludwig Boltzmann Society and National Foundation for Research, Technology and Development.
Project duration: 2023 -
Project team (OR): Kathrin Morasek, Tanja Stamm, Valentin Ritschl, Maryam Jafarpour
Scope: Chronic wounds pose a major clinical and economic challenge, requiring robust, up-to-date evidence to inform healthcare planning and patient-centred care. This project aims to (1) conduct a systematic review and meta-analysis to provide an updated synthesis of the prevalence and incidence of chronic wounds in the general population, (2) investigate the prevalence and incidence of chronic wounds in Austria using real-world data, and (3) develop and apply AI-based image analysis methods to support diagnosis and the prediction of wound characteristics. Together, these approaches aim to improve epidemiological understanding and advance data-driven decision support in chronic wound care.
Project: Management recommendations and studies in the field of Rheumatic and Musculoskeletal Diseases (RMDs)
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: ongoing
Project team (OR): Tanja Stamm, Valentin Ritschl, Erika Mosor, Lisa Dorfer
Scope: The EULAR (European Alliance of Associations for Rheumatology) regularly develops and publishes recommendations for the treatment of various rheumatic and musculoskeletal diseases and conducts a large number of clinical studies. Members of our institute were involved as experts.
Selection of publications:
Hand OA - https://pubmed.ncbi.nlm.nih.gov/30154087/
RA - https://pubmed.ncbi.nlm.nih.gov/36357155/
ICF SSC - https://pubmed.ncbi.nlm.nih.gov/21540204/
PROMs in RMDs - https://pubmed.ncbi.nlm.nih.gov/15593365/
Osteoporosis - https://pubmed.ncbi.nlm.nih.gov/32332077/
Project: The mere-measurement effect of patient-reported outcomes: a randomised controlled trial on speech pathologies
(Partly) Funded: FWF Österreichischer Wissenschaftsfond
Project duration: 2024 -
Project team (OR): Preston Long, Tanja Stamm, Valentin Ritschl
Scope: The mere-measurement effect is the phenomenon in which subjects exposed to measurements have their perceptions and/or behaviors on the inquired topic affected simply through the act of responding. The aim of the study is to explore whether the mere-measurement effect has potential to shape respondents' behaviors or perceptions for the better.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/39907942/
Project: ResearchSurvey
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2021 -
Project team (OR): Erika Mosor, Tanja Stamm, Valentin Ritschl, Lisa Dorfer
Scope: The study explores the perspectives of health professionals across Europe and beyond on how to best support research among health professionals in rheumatology.
Project: Outcomes in osteoarthritis of the temporomandibular joint
(Partly) Funded: No funding
Project duration: 2019 -
Project team (OR): Shiva Shayestehpour, Tanja Stamm
Scope: Oral diseases and disorders can cause significant pain and adversely affect daily oral function, self-esteem, overall well-being, and social participation. This study addresses the limited understanding of the pathogenesis of temporomandibular joint (TMJ) osteoarthritis. Given that chronic pain reported by patients is the most common clinical symptom, there is an urgent need to evaluate and strengthen current patient-reported outcome and pain assessment protocols to improve care and outcomes for affected individuals.
Project: Value-Based Health Care at the AKH Wien
(Partly) Funded: AKH Wien
Project duration: 2023 -
Project team (OR): Tanja Stamm, Anna Kienel, Caerina Petutschnig, Vera Eschenbach, Dominique Hennekes
Scope: This project focuses on the co-development of patient pathways for various diseases, incorporating Patient Reported Outcomes Measures (PROMs) and Patient Reported Experience Measures (PREMs).
Project: Early Career Network for Health Outcomes Research & Management
Website: https://echorm.org/
(Partly) Funded: No funding
Project duration: 2022 –
Project team (OR): Preston Long, Margaret Renn Andrews, Nadja Kartschmit, Maisa Omara
Scope: Interest in outcomes research—especially patient-reported outcomes and value-based care—has grown rapidly in recent years, yet no international network exists to connect early-career professionals. We founded the Early Career Network for Health Outcomes Research & Management (ECHORM) at the Medical University of Vienna with international partners to foster collaboration, mentorship, and leadership development. ECHORM will support the advancement of solidarity-based value-based healthcare systems across Europe and beyond, ultimately improving patient outcomes.
Closed Projects
Project: H2O Health Outcomes Observatory
Website: https://health-outcomes-observatory.eu/
(Partly) Funded: IHI Innovative Health Initiative
Project duration: 2020–2026
Project team (OR): Tanja Stamm, Erika Mosor, Margaret Renn Andrews, Preston Long, Valentin Ritschl, Melanie Ferk-Dornstauder, Valentina Schmolik, Florian Katsch
Scope:
The Health Outcomes Observatory project (H2O) brings together the public and private sectors to create an unprecedented, standardised data governance and infrastructure system across Europe that incorporates patients’ experiences and preferences in decisions affecting their individual health care and those of the entire patient community.
With H2O infrastructure and tools, patients will be able to measure their outcomes in a standardised way, whilst retaining control over their data. Ultimately, this observatory framework aims to foster innovation in health care across Europe and beyond to deliver better outcomes for all.
Selection of publications:
https://catalyst.nejm.org/doi/abs/10.1056/CAT.21.0146
https://pubmed.ncbi.nlm.nih.gov/35779941/
https://pubmed.ncbi.nlm.nih.gov/36103777/
https://pubmed.ncbi.nlm.nih.gov/38017616/
https://pubmed.ncbi.nlm.nih.gov/38019894/
Project: Smart and Federated Open data eXchange of citizen-based data donations for clinical research
Website: https://www.smart-fox.at/
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2024 - 2026
Project team (OR): Tanja Stamm, Valentin Ritschl, Michael Vorstandlechner
Scope: Smart FOX lays the groundwork for making citizen-based data donations of ELGA-standardized information usable in clinical research. Through the active participation of citizens, who will be able to make their health data available for research purposes in the future, the project paves the way for more efficient clinical research, improved healthcare, and optimized system control in the healthcare sector.
Project: Being equipped to tackle epidemics right
Website: https://www.wwtf.at/funding/programmes/ls/LS22-071/,
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2023 - 2026
Project team (OR): Tanja Stamm, Valentin Ritschl, Michael Vorstandlechner
Scope: The goal of BETTER is to use real data from the COVID-19 pandemic to model hypothetical decision-making scenarios that are applicable to future epidemic or pandemic situations. Based on scenario calculations and model results, as well as interviews and workshops with stakeholders, concrete recommendations will be developed for healthcare decision-makers to improve preparedness for future public health crises caused by infectious diseases.
Project: Develop a digital service to improve care and quality of life in patients with Rheumatoid Arthritis (Rheumabuddy)
Website: https://www.dwh.at/projects/rb40/
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2020 - 2024
Project team (OR): Tanja Stamm, Valentin Ritschl, Erika Mosor
Scope: Development of digital health technology to improve the care and quality of life of patients with rheumatoid arthritis
Project: Mobile Patient-centred System to Improve Drug Trials and Care of Older-adults with Rheumatic Diseases
Websites: https://cotidiana.eu/, https://projekte.ffg.at/projekt/3962147
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2021 - 2024
Project team (OR): Tanja Stamm, Erika Mosor
Scope: COTIDIANA enables holistic and efficient patient monitoring for clinical care, clinical research, and drug trials. The system includes a mobile app for patients and a web app for clinicians working in clinical care.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/40579184/
Project: The mental Health eXperience; Indication - iNtervention – eXperience
Website: https://projekte.ffg.at/projekt/3381419
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2020 – 2023
Project team (OR): Tanja Stamm, Romualdo Ramos, Erika Mosor
Scope: mHealthINX technology aims to support older employees (50+) in their mental health in the workplace.
Project: Robotic ePartner for Memory INnovative activation of people with Dementia
Website: https://projekte.ffg.at/projekt/2842834
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2018 - 2022
Project team (OR): Tanja Stamm, Erika Mosor
Scope: The ReMIND project aims to improve the quality of life of patients with mild cognitive impairment through the use of a combined ICT solution. Music, images, and physical exercises are used to stimulate physical and mental activity, thereby improving the mood and emotions of patients and promoting social contact. ReMIND uses a humanoid robot from the company “Zora” and a standard tablet.
Project: Deploying AAL Packages at Scale A large scale rollout and evaluation of an innovative AAL support package
Website: https://dapas-project.eu; https://projekte.ffg.at/projekt/2844993
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2018 - 2021
Project team (OR): Tanja Stamm, Erika Mosor
Scope: Implementation and evaluation of an innovative Active and Assistive (AAL) support package for the everyday life of older people in several countries.
Selection of publications: https://pmc.ncbi.nlm.nih.gov/articles/PMC9087387/
Project: AUREAAL - Augmented Reality Brillen für Virtuell Kooperative Active Assisted Living Szenarien
Website: https://projekte.ffg.at/projekt/3311829
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2019 - 2020
Project team (OR): Claudia Oppenauer, Tanja Stamm
Scope: AuReAAL collects the framework conditions for AR glasses features in real-world applications and processes them in an open innovation process.
Project: Smart Pölten
Website: https://www.b-nk.at/projekte/gruenes-planen-wohnen-leben/smart-poelten/
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2018 - 2020
Project team (OR): Claudia Oppenauer, Tanja Stamm, Erika Mosor
Scope: Green and open space design as a dynamic field of development for quality of life through social innovations. In addition to green innovations, the central components of the project include model development and measurement of social impact, as well as process innovations to enable sustainable implementation by citizens.
Project: Trainingsstützung im Alltag nach Rehabilitation Hüft-TEP
Website: https://projekte.ffg.at/projekt/2812174
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2017 - 2020
Project team (OR): Claudia Oppenauer, Tanja Stamm
Scope: The aim of the project is to support people with hip replacements during and after a rehabilitation stay in their own homes using an augmented reality (AR) exercise game and a head-mounted display.
Project: Demenz-App
Website: https://projekte.ffg.at/projekt/2812166
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2017 - 2019
Project team (OR): Valentin Ritschl, Tanja Stamm, Erika Mosor
Scope: Development of an app to support informal caregivers of people with cognitive impairment.
Project: Train and Win
Website: https://projekte.ffg.at/projekt/1733844
(Partly) Funded: Österreichische Forschungsförderungsgesellschaft (FFG)
Project duration: 2016 - 2018
Project team (OR): Claudia Oppenauer, Tanja Stamm
Scope: Training in a playful way and improving quality of life – development of an ICT-supported, feedback-oriented mobilisation programme.
Project: PIPPI – Platform for Innovation of Procurement and Procurement of Innovation
Website: https://pippi-platform.eu/
(Partly) Funded: EU Horizon 2020 Grant
Project duration: 2018 - 2022
Project team (OR): Margaret Renn Andrews, Tanja Stamm, Preston Long, Romualdo Ramos
Scope: The project established a cross-border Community of Practice bringing together leading European university hospitals and others to share knowledge on innovation procurement and to connect demand- and supply-side experts in addressing shared unmet needs through digital healthcare solutions developed via the EU’s procurement of innovation structure.
Selection of publications:
Project: Evaluation of the Wiener Schulfruchtprogramm
Website: https://bildungshub.wien/projekte/wiener-schulfruchtprogramm/
(Partly) Funded: Wiener Gesundheitsförderung (WiG)
Project duration: 2018–2019
Project team (OR): Tanja Stamm, Erika Mosor
Scope: Evaluation of the Vienna School Fruit Program. The purpose of the process and results evaluation is to support project implementation and management as well as the final verification of the achievement of the project objectives.
Project: Generationen bewegen
(Partly) Funded: Wiener Gesundheitsförderung (WiG)
Project duration: 2014 - 2017
Project team (OR): Tanja Stamm, Erika Mosor, Valentin Ritschl, Maisa Omara
Scope: Limited evidence exists for intergenerational interventions to promote health and well-being in older adults and preschool children. We therefore aimed to evaluate the implementation, feasibility and outcome of an intergenerational health promotion program based on psycho-motor activity.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/30823911/
Project: Methodological quality of clinical practice guidelines following COVID-19
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Tanja Stamm, Margaret Renn Andrews, Erika Mosor, Valentin Ritschl, Gabriele Gäbler, Maisa Omara
Scope: The number of published clinical practice guidelines related to COVID-19 has rapidly increased. This study explored if basic methodological standards of guideline development have been met in the published clinical practice guidelines related to COVID-19.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/33691153/
Project: Determinants of COVID-19 Vaccine Fatigue
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 -2021
Project team (OR): Tanja Stamm, Erika Mosor, Valentin Ritschl
Scope: There is growing concern that Coronavirus Disease 2019 (COVID-19) vaccine fatigue will be a major obstacle in maintaining immunity in the general population. In this study, we assessed vaccine acceptance in future scenarios in two conjoint experiments, investigating determinants such as new vaccines, communication, costs/incentives and legal rules.
Selection of publications: https://www.nature.com/articles/s41591-023-02282-y
Project: Coronavirus vaccine hesitancy among unvaccinated Austrians
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Tanja Stamm, Erika Mosor, Valentin Ritschl
Scope: The aim of our study was therefore to investigate the reasons for vaccine hesitancy and to evaluate which measures—information, incentives, and regulations—could increase willingness to be vaccinated.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/35475036/
Project: Rasch Model of the COVID-19 Symptom Checklist-A Psychometric Validation Study
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Tanja Stamm, Erika Mosor, Valentin Ritschl, Maisa Omara, Margaret Renn Andrews
Scope: While self-reported Coronavirus Disease 2019 (COVID-19) symptom checklists have been extensively used during the pandemic, they have not been sufficiently validated from a psychometric perspective. We used advanced psychometric modelling to explore the construct validity and internal consistency of an online self-reported COVID-19 symptom checklist and suggested adaptations where necessary.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/34578343/
Project: Care redesign after the pandemic
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Tanja Stamm, Erika Mosor, Yuki Seidler, Margaret Renn Andrews, Valentin Ritschl, Maisa Omara
Scope: We explored the perspectives of patient representatives in all six World Health Organisation (WHO) regions and extracted suggestions for care redesign after the pandemic.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/35173439/
Project: Perspectives and needs of people at increased risk of severe illness from COVID-19
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Erika Mosor, Tanja Stamm, Valentin Ritschl, Margaret Renn Andrews, Maisa Omara, Claudia Oppenauer
Scope: There is a lack of knowledge on how people at increased risk of severe illness from COVID-19 experienced the infection control measures. This study aimed to explore their perspectives and needs during the coronavirus outbreak.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/34820699/
Project: Translation and Cultural Adaptation of the COVID-19 Yorkshire Rehabilitation Scale
(Partly) Funded: Wiener Wissenschafts-, Forschungs- und Technologiefonds (WWTF)
Project duration: 2020 - 2021
Project team (OR): Lisa Dorfer, Tanja Stamm, Erika Mosor, Valentin Ritschl
Scope: This study aimed to develop a German version of the COVID-19 Yorkshire Rehabilitation Scale (C19-YRS).
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/39296896/
Project: Culture of Care Barometer (CCB)
(Partly) Funded: EU Horizon 2020 Grant
Project duration: 2019 – 2020
Project team (OR): Margaret Renn Andrews, Tanja Stamm
Scope: This project translated and culturally adapted the Culture of Care Barometer into German as part of a multi-country effort of the European University Hospital Alliance (composed of eleven of the leading university hospitals in Europe) to scientifically measure the relationship between workplace culture and patient outcomes.
Project: NephroSexDifferences
(Partly) Funded: FWF Österreichischer Wissenschaftsfond
Project duration: 2018 - 2019
Project team (OR): Tanja Stamm
Scope: The project aims to identify sex-specific differences in decision-making among physicians, other health professionals, and patients with end-stage renal disease regarding the initiation of renal replacement therapy, and examine how socio-economic and environmental factors—differing by sex—shape patients’ day-to-day management of their condition (and comorbidities) and influence decisions about starting renal replacement therapy.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/30476247/;
https://academic.oup.com/ndt/article/34/6/1026/5195623;
https://www.sciencedirect.com/science/article/pii/S2468024921015059
Project: Normality, the most important outcome for families of long-term survivors of pediatric kidney transplantation: a qualitative, biographic study
(Partly) Funded: No funding
Project duration: 2018 - 2024
Project team (OR): Valentin Ritschl, Tanja Stamm, Erika Mosor, Lisa Dorfer, Natalie Vachuda, Anna Bösendorfer, Maisa Omara
Scope: The aim of this study was to analyze the narrative life stories of children with end-stage renal disease and their families in order to determine how healthcare professionals can effectively support these children to achieve better health outcomes.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/38212079/
Project: New insights on factors associated with non-adherence in rheumatoid arthritis
(Partly) Funded: Abbvie
Project duration: 2017 - 2018
Project team (OR): Valentin Ritschl, Tanja Stamm, Erika Mosor, Maisa Omara
Scope: Non-adherent patients are at greater risk of not achieving optimal clinical outcomes. We investigated factors that are associated with non-adherence from the perspective of rheumatoid arthritis patients.
Selection of publications: https://pubmed.ncbi.nlm.nih.gov/30340628/
Project: Perspectives of young people with inflammatory arthritis on patient-reported outcomes (PROs) and EULAR Points to Consider for the development and use of PRO measures (PROMs)
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2019 - 2022
Project team (OR): Erika Mosor, Tanja Stamm
Scope: The study explored the perspectives of young people with inflammatory arthritis on patient-reported outcomes (PROs) and formulated recommendations to be taken into account in the development and use of PROMs.
Project: Euro-TEAM (Towards Early diagnosis and biomarker validation in Arthritis Management) – Perspectives and information needs of people who underwent predictive tests for rheumatoid arthritis
Website: https://cordis.europa.eu/project/id/305549/reporting
(Partly) Funded: European Union’s FP7 Health Programme ; the Innovative Medicines Initiative (IMI) Joint Undertaking and the Riksbankens Jubileumsfond (The Swedish Foundation for Humanities and Social Sciences)
Project duration: 2013-2017
Project team (OR): Erika Mosor, Tanja Stamm
Scope: Little is known about the experiences, values, and needs of people without arthritis who undergo predictive biomarker testing for the development of rheumatoid arthritis (RA). Our study aimed to explore the perspectives of these individuals and describe their information needs.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/33514672/,
https://pubmed.ncbi.nlm.nih.gov/35906026/
Project: Patient-reported outcomes - a new basis for prediction models
Website: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00066-9/fulltext
(Partly) Funded: No funding
Project duration: 2025
Project team (OR): Tanja Stamm, Preston Long, Valentin Ritschl, Erika Mosor
Scope: Patient-reported outcomes: a new basis for prediction models
Even when using data from sensors and devices, health professionals still require self-reported outcomes from the patients. The measurement of subjective components, such as pain, fatigue, and wellbeing, using sensors and clinical data is limited, since these methods typically quantify functioning and disease severity rather than information about the patient's experience. Patients' self-reporting is thus an essential component of health outcome measurements.
Project: How to address fatigue in systemic sclerosis
(Partly) Funded: No funding
Project duration: 2020
Project team (OR): Tanja Stamm, Erika Mosor, Maisa Omara, Valentin Ritschl
Scope: Thoughts on how to address fatigue in a way that can be accessed by all patients and tailored based on differences in gender, culture, and other social determinants of health.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/38263648/
Project: Outcomes research in non-specific low back pain
(Partly) Funded: No funding
Project duration: 2019
Project team (OR): Tanja Stamm, Anna Bösendorfer, Erika Mosor, Maisa Omara, Sinisa Stefanac, Valentin Ritschl
Scope: The project aimed to provide an overview and discuss current concepts and future trends in outcomes research in non-specific low back pain, specifically considering the perspective of patients, patient-reported outcomes and outcome measures as well as to facilitate knowledge transfer into clinical practice.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/31236662/
Project: Gender disparities in rheumatology research
(Partly) Funded: No funding
Project duration: 2022 - 2023
Project team (OR): Margaret Renn Andrews, Tanja Stamm, Erika Mosor
Scope: Interest in gender equity has increased in the past decades, as the share of women in the global medical workforce has grown, including within the field of rheumatology. This study examined research findings in the field of rheumatology, taking gender into account, and explored possible causes for the apparent inequality in authorship during the COVID-19 pandemic.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/38251572/
Project: Educational needs among Health Professionals in Rheumatology
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2020 - 2023
Project team (OR): Valentin Ritschl, Tanja Stamm, Lisa Dorfer, Margaret Renn Andrews, Erika Mosor
Scope: Ongoing education of health professionals in rheumatology (HPR) is critical for high-quality care. An essential factor is education readiness and a high quality of educational offerings. We explored which factors contributed to education readiness and investigated currently offered postgraduate education, including the European Alliance of Associations for Rheumatology (EULAR) offerings.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/37230762/
Project: Suitability for e-health of non-pharmacological interventions in connective tissue diseases
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2019 - 2021
Project team (OR): Valentin Ritschl, Tanja Stamm, Erika Mosor
Scope: The aim of this study was to review existing evidence on non-pharmacological interventions in patients with systemic lupus erythematosus (SLE), systemic sclerosis (SSc), and mixed connective tissue disease in terms of content, feasibility, and potential suitability for use in the e-health sector.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/34326205/
Project: Empowered2work
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2020 - 2023
Project team (OR): Erika Mosor
Scope: People with RMDs will act as multipliers to support others to stay in or return to paid and unpaid work. Development and conduct of workshops including educational material to train people with rheumatic and musculoskeletal disorders to help others remain in or return to paid or unpaid work.
Project: Patient-Reported Outcome Measures für vulnerable Bevölkerungsgruppen mit rheumatischen und muskuloskelettalen Erkrankungen
(Partly) Funded: Ludwig Boltzmann Institut (LBI)
Project duration: 2022 - 2024
Project team (OR): Erika Mosor, Tanja Stamm, Lisa Dorfer
Scope: To date, no studies have been conducted to determine whether the measurement instruments used in rheumatology to collect patient-reported outcomes also capture the problems and difficulties experienced by vulnerable patient groups. The project will investigate whether the PROMs routinely used in rheumatology also cover what is important from the perspective of people with rheumatic diseases and a migration background, low health literacy, learning disabilities, or advanced age, caregivers, and patient representatives.
Project: SParra Questionnaire - Symptom measurement in persons at risk of rheumatoid arthritis
(Partly) Funded: European Alliance of Associations for Rheumatology (EULAR)
Project duration: 2015 - 2017
Project team (OR): Erika Mosor, Tanja Stamm
Scope: The study aimed to describe the development and assess the psychometric properties of the novel 'Symptoms in Persons At Risk of Rheumatoid Arthritis' (SPARRA) questionnaire in individuals at risk of rheumatoid arthritis (RA) and to quantify their symptoms.
Selection of publications:
Project: DIET - Diätologische Fachsprache
(Partly) Funded: No funding
Project duration: 2016 - 2019
Project team (OR): Gabriele Gäbler, Tanja Stamm
Scope: Nutrition and dietetics plays an important part within the interdisciplinary team in many health conditions. In order to work more effectively as an interdisciplinary team, a common terminology is needed. This study investigates which categories of the ICF-Dietetics are used in clinical dietetic care records in Austria and which are most relevant to shared language in different medical areas.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/29550151/
Project: Rasch model of the child perceptions questionnaire in multi-country data
(Partly) Funded: No funding
Project duration: 2018 - 2020
Project team (OR): Tanja Stamm, Maisa Omara
Scope: We used advanced statistical approaches to determine the Child Perceptions Questionnaire for children's accuracy, precision, invariance and dimensionality and analyzed whether age range could be extended from 8 to 15 years.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/31866414/
Project: PreNatScreening
(Partly) Funded: No funding
Project duration: 2017 - 2019
Project team (OR): Yuki Seidler, Erika Mosor, Tanja Stamm
Scope: Japan is the only country in the world that allows abortions due to economic reasons but illegalise them due to foetal anomaly. The objective of this study was to explore the choice-making experiences for prenatal screening among Japanese women and their spouses in Austria.
Selection of publications:
https://pubmed.ncbi.nlm.nih.gov/31358327/
Project: Sex edu
(Partly) Funded: No funding
Project duration: 2017 - 2019
Project team (OR): Radhika Seiler-Ramadas, Erika Mosor, Maisa Omara
Scope: This study aimed to qualitatively investigate whether sex education in Austria facilitates the development of adolescent sexuality and awareness of sexually transmitted infections (STIs) and highlights practical ideas that could help achieve a comprehensive form of sex education in schools.
Selection of publications:
https://www.tandfonline.com/doi/full/10.1080/14681811.2019.1668761
Project: Lebensnetz - ein Serious Game zur Demenzprävention und Therapie
(Partly) Funded: No funding
Project duration: 2015 - 2017
Project team (OR): Daniela Schlager Jaschky, Erika Mosor, Tanja Stamm
Scope: Development of a catalogue of requirements for a serious game for preventing and treating dementia.
Selection of publications:
https://link.springer.com/chapter/10.1007/978-3-642-39062-3_41